Achondroplasia is a rare genetic condition, which affects the normal growth of human skeleton. It is important for patients, their families and physicians to be able to connect and to share information. A new registry, entitled ReACH, has been developed in cooperation between the Faculty of Medicine of the Masaryk University (FM MU) and the Institute of Biostatistics and Analyses of the Masaryk University (IBA MU).
The ReACH registry makes it possible to share experience and information concerning treatment in clinical practice. It also helps scientists to understand better clinical aspects, incidence and epidemiology of achondroplasia in Central Europe. The registry will also make it possible to search for volunteers to participate in clinical trials focused on achondroplasia. Finally, the registry enables patients and their families to provide feedback to health care professionals regarding the quality of care and how it might be possibly improved.
More information about the registry is available on the project website.
The topic of data-driven decision-making was presented by the head of DDT IBA FM MU at the global conference of the European Society for Simulation in Medicine (SESAM). A digital poster with a presentation presented the experience with the introduction of data as an objective and valid basis for further decision-making in medical education at LF MU.
For the first time in history, the 16th MEFANET conference was held outside the Czech Republic in the Slovak Congress Hotel Centrum in Košice. The whole event was held in the spirit of artificial intelligence in medical education, virtual reality and there were also short presentations by regular participants about their improvement and modernization of teaching.
