New registry of patients with achondroplasia
Achondroplasia is a rare genetic condition, which affects the normal growth of human skeleton. It is important for patients, their families and physicians to be able to connect and to share information. A new registry, entitled ReACH, has been developed in cooperation between the Faculty of Medicine of the Masaryk University (FM MU) and the Institute of Biostatistics and Analyses of the Masaryk University (IBA MU).
The ReACH registry makes it possible to share experience and information concerning treatment in clinical practice. It also helps scientists to understand better clinical aspects, incidence and epidemiology of achondroplasia in Central Europe. The registry will also make it possible to search for volunteers to participate in clinical trials focused on achondroplasia. Finally, the registry enables patients and their families to provide feedback to health care professionals regarding the quality of care and how it might be possibly improved.
More information about the registry is available on the project website.
Major European activity in the fight against cancer with the Czech participation
With the end of 2021 approaching, the EU iPAAC Joint Action is also coming to an end. Its main output is an online database of projects, activities and recommendations in various areas of cancer prevention and care, to the development of which the joint workplace of the Institute of Biostatistics and Analyses at the Faculty of Medicine of the Masaryk University and the Institute of Health Information and Statistics of the Czech Republic has significantly contributed.
Infomore.cz project wins AMEC Awards 2021
The Infomore.cz website has recently won the AMEC Awards, a global competition for media analysts. The project won in the category focused on effective planning, research and evaluation of communication.
A new study programme Public Health has been accredited
On 24 June 2020, MU’s Faculty of Medicine received accreditation for a new MSC study programme Public Health for 7 years. First students will start their education in this programme probably in the academic year 2021/2022.